Seventy-five years ago, in 1939, 35 year old Lou Gehrig delivered his famous farewell speech. Two years later, Lou Gehrig died of ALS. Today, both on and off the field, Lou Gehrig remains an inspiration to millions. He continues to represent fortitude, humility, and courage to the tens of thousands of Americans living with the disease that bears his name. Since 1939, an estimated 375,000 Americans have been diagnosed with ALS. Seventy-five years later, there is no cure, no medical treatments or drugs that effectively treat this horrendous disease. ALS today is under-funded, under-resourced and it is largely ignored.
When Jim was diagnosed with ALS, we knew very little of the disease that would forever change our lives. Most people we meet know very little about the disease, and some have never heard even heard of it. May was ALS Awareness month, and yes, I'm a month behind, welcome to my life, however, Jim and I encourage you to help us spread awareness. Sadly, most ALS patients don't live long enough to be advocates or a voice for their disease. Thousands of ALS survivors do not participate in fundraising events every year wearing "I'm a survivor" t-shirts. Victims of ALS need our help, spread the word, WE NEED A CURE FOR ALS!!
Ok, I'll step down from my soapbox now. Summer is upon us, yay!! We have a lot planned over the next couple of months, I hope Jim is done relaxing! As far as how Jim is doing, well about the same. No major changes for the better or worse. He's still getting around on his own, however, his neck gets really sore if he stands or walks for too long. Eating is still a drag, as chewing and swallowing doesn't come easy. Lounging on the couch is his happy place with the Discovery Channel on the TV, his Bible in his lap, and Pastor's Perspective on the radio, all at the same time.
In April, Jim was baptized at our church.
It was a beautiful day!
Like Mr. Gehrig, Jim may have been given a bad break, but he has an awful lot to live for. It's our hope and prayer that someday we'll be able to name a cure after Lou Gehrig instead of a disease.
A little education goes a long way, here are a few of our favorite ALS sites:
Team Gleason, founded by Steve Gleason, former New Orleans Saint, living with ALS.
In the OC area on September 20th? Join us at the 3rd Annual Walk for ALS Guardian Angels 2014
More info on how to join our team soon!
xo