Oh What a Year It Has Been...

At this time last year, we were struggling to find the hope in our future. We were just given the devastating news of Jim's ALS, and it felt like our world had just come crashing down around us. It's amazing that something as awful as Jim's diagnosis, could actually bring with it a whole lot of good. We have spent the last year growing our relationships with family, friends, and most importantly with our Heavenly Father.  We have discovered what is important in life, and what isn't. Today, we are more hopeful than ever in a bright future. Only God knows how it all turns out, and for those who belong to Him, it turns out well. 

It's been almost 3 months since Jim's stem cell treatment, and to say for certain it has slowed progression is hard to determine. I do know that he is still walking, and feels no effects in his legs, so that in itself is very encouraging! He does continue to struggle with his speech and eating is difficult because of having no muscle control in his tongue. His left arm/hand has lost all muscle, and his right arm/hand functions at about 25%. His will, determination, sense of humor, courage and strength is functioning at 100%!

Jim continues with his daily routine of supplements, and is seen by his functional neurologist twice a week. His body is tired and sore, but his spirit is alive and well.

After 25 years in the business, Jim has officially retired from construction. He is enjoying spending his days hanging out with family, taking his best buddy Blu on long walks, and caring for his 8 backyard chickens. His honey-do list keeps him off the couch as well as his two soon-to-be 5 year olds (he's not getting off the hook this easy).  Most exciting, Jim taught me how to use his jigsaw and table saw, and together we made 12 Christmas crafts/gifts this year.  His tools are now mine!  Praying my next blog won't include anything about my missing fingers.

From our family to yours, we wish you a very Merry Christmas, and a blessed 2014. May your holidays be filled with the love of family and friends.

~ Jim and Dionne

 Have I not commanded you? Be strong and courageous. Do not be afraid; do not be discouraged, for the Lord your God will be with you wherever you go.”  Joshua 1:9




Thanksgiving 2013

        

A Little Wedding and a Whole Lot of Stem Cell

Jim and I had an amazing weekend in Carmel.  The Northern/Central California coast is so beautiful, and made for the perfect little relaxation spot to rest Jim's body prior to his stem cell procedure. Even more beautiful is the fact that Jim and I decided to stop in Santa Barbara and get married on our way to Carmel!  It was a long time coming, and we both really felt now was the time to finally make it official.  The wedding and the weekend couldn't have been more perfect, and we are so thankful it went as well as it did, and of course for our support team who made it all possible.

Upon our return from Carmel, Jim started his week of stem cell treatments, and I'm happy to say Jim did great!  The doctor told me after the second procedure that Jim was one tough cookie, but of course I already knew that!  The procedure was hard on Jim's body, and he was very tired and sore afterwards, but he is slowly but surely getting back to where he was prior to the surgery.  Jim is supposed to be resting for 3 weeks following the procedure, that has probably been the most difficult part. We have been told that it can take up to 4 months before he might notice anything different in his progression.  The new and healthy stem cells will not fix the dead cells in his body, but the hope is that the new cells will significantly slow the progression of the disease (that's about as far as I'll go with a medical description for fear of making myself sound incompetent).

We are so grateful for the opportunity to have this treatment done, thanks to the support of our family, friends, and even those we have never met.  It's comforting knowing that whether we're successful or not successful, we took advantage of every opportunity given to us in the hopes of controlling this disease.

"Life isn't about waiting for the storm to pass, it's about learning to dance in the rain."

Thank you all for dancing along with us!  xo



Santa Barbara, CA

 

ALS Guardian Angels Foundation

This past weekend, Jim and I had the great pleasure of meeting Stu Millheiser. Stu is the founder of the ALS Guardian Angels Foundation. This foundation is committed to helping families effected by ALS. 

"Most ALS related organizations are dedicated to finding a cure. Until then, ALS patients need help living. The ALS Guardian Angels Foundation is dedicated to helping patients and their families live with ALS while maintaining the best quality of life possible."

~Stuart Millheiser

We, along with a group of our family and friends, attended the 2nd Annual ALS Guardian Angels walk on September 21st. Over $50,000 was raised to support Stu's cause, and we were so happy to be a part of it.  You can find more information about the foundation on their website at ALS Guardian Angels.

On October 5th, our daughter Corie, along with two friends, are putting on a fundraiser called Race for Racobs.  The event starts at Capistrano Valley High School in Mission Viejo at 9:00am, and lasts until approximately 2:30pm.  You can find more information at their website:  http://race4racobs.eventbrite.com/. 

Soon, Jim and I will be in Carmel, Ca, enjoying a two night getaway, courtesy of the Ellen Degeneres Show!  We are beyond excited!  Jim will be enjoying a much needed 3 days of relaxation, getting mentally and physically prepared for his stem cell treatment. 

Looking forward to updating you all on how the treatment goes.  Until then, stay well, and remember to count your blessings!  xo

“You haven’t lived until you have done something for someone who can never repay you”





2nd Annual ALS Guardian Angels Foundation Walk 2013
Team - Racobs Brigade



Our sign: "In Honor of Jim Racobs"

Stem Cell - It's a Go!

Ok, Ok, so I won't be winning the "Blogger of the Year" Award, and I'm certainly not the next Pioneer Woman. My apologies for the 4 month hiatus. If only I had some fantastic recipes or amazing "Do it Yourself" projects to share on a daily basis!

But no time for that. However, things are finally getting exciting as far as Jim's stem cell progress goes! A couple of months ago, we got the results back from Jim's heavy metal tests. Turns out some of his heavy metal levels were high. Mercury and lead to be exact. For the past 8 weeks, Jim has been taking tablets to decrease these levels, and fortunately it worked! Last week, Jim was approved to move forward with the stem cell process. The procedure is scheduled for September 30th and October 1st.

We are very excited and hopeful the stem cell procedure will slow the progression of his ALS. Of course there are no guarantees, but we are always hopeful. As far as how he is doing, Jim is still 100% committed to the Paleo diet, and relies heavily on his faith.  Jim's muscle atrophy in his left arm/hand are pretty significant, and his right arm/hand are showing signs of weakness. His speech is significantly affected as well, and at times can be hard to understand, especially on the phone. Fortunately, he shows no signs of weakness in his legs. Jim is mentally and spiritually stronger than he has ever been, and for that we are very grateful. 

The last four days Jim has enjoyed exploring Utah, Yellowstone and Idaho with his sister Kim and our daughter Colbie. Colbie returned to college in Rexburg, Idaho, and Jim was fortunate to be the one to drive her there.

On September 21st, we will be taking part in a walk benefiting the ALS Guardian Angels foundation.  If you're in the Irvine, CA area on the 21st, stop by and join the Racobs Brigade!

Thank you, as always, to all that have made the stem cell treatment process possible through your support, prayers and donations.  I will let you know how it goes, in the meantime, I will work on coming up with some great "DIY" projects to grace you with. (not really)

"God whispers to us in our pleasures, but He shouts to us in our pain. Pain is God's megaphone."

~ C.S. Lewis




Bryce Canyon, UT

 

Jim and Colbie

Drip...Drip...Drip

Jim and I are at the stem cell treatment center and this is where will be for the next 2 - 3 hours.  Jim has to have an IV drip as part of the heavy metal testing that has to be done prior to his stem cell procedure.  The test results should be back in about 2 weeks.  If any heavy metals are found, he will be put on a treatment plan to flush them out.  Praying that none are found so he can get the stem cell sooner rather than later!

Anyone who knows me, knows I don't do well with blood or needles.  Fortunately, I'm not the one with a needle in my arm, unfortunately, there is a lady across from me that is getting some sort of blood transfusion or who knows what and I'm feeling a tad weak!  "Dear Lord, please help me stay strong, I can handle this!"

We will be back at the treatment center once the test results are all in to have a final consultation.  Thank you again to those have made this all possible through your prayers, and or, donations.  We are grateful for each and every one of you!  Together in HOPE...

Jim relaxing in the easy chair, getting his IV.

We Survived!

We're back safe and sound from our road trip to Gypsum, Colorado.  The 16 hour drive with 3 kids and a puppy went much better than expected!  Jim's mom and sister were kind enough to open their home to us for the week.  We really enjoyed visiting with them, since we don't get to see them as often as we would like.  Jim was able to "remodel" his mom's chicken coop before the snow came, and the kids had a great time playing in the snow once it arrived. Thankfully, the snow only stuck around for one day.  Living in Colorado, Jim's family is tired of the snow, but it was a special treat for us!  Well, not "us", I mean the kids, I personally am not a big fan of snow. :) 

While there, we visited Jim's naturopath doctors that treated him back in January, for some cleansing and detoxing.  I even got in on the fun and had a foot bath detox. If only they would have polished my toes, I would have been set! After his appointments, we relaxed at the Glenwood Hot Springs.  It's pretty cool swimming in a huge pool of natural warm water, surrounded by snow covered mountains.  What an amazing experience. Although I will say, I have been to the hot springs in Steamboat Springs, CO, and they're even more amazing!

On the way home to California we spent a few days at Lake Las Vegas to thaw out.  What a beautiful place the Westin Lake Las Vegas is.  I would highly recommend it if you're ever in that area and want to stay somewhere that doesn't scream "Vegas". 

We needed a vacation from our vacation by the time we got home, but we're so thankful we were able to make the trip.  Last week, Jim had his weekly appointment with his functional neurologist and an appointment with the Bio dentist.  After the dentist reviewed his x-rays, it turns out he has no mercury fillings, so he his cleared for stem cell treatment.  Great news, so excited for him to start the treatment in 3 weeks! 

Speaking of stem cell, if you haven't checked out Jim's GoFundMe account lately, we are almost at our goal!  So amazing!  I honestly can not believe the amount of love and support Jim has received.  To say you are appreciated would be an understatement.  Thank you so much for joining the fight, how blessed we are to have each and everyone of you in our lives!  Stay tuned!  xoxo

Chicken Coop Remodel!

Snow Day!

Glenwood Hot Springs

Lake Las Vegas

Man's Best Friend - Meet Blu

We have a new addition to our family...the four-legged furry kind!  Last Friday, we headed to the airport to pick up Blu, our 9 week old Blue Queensland Heeler, aka, Australian Cattle Dog. Blu flew in all the way from a breeder in Missouri. Jim has always wanted this breed of dog, and after having to put our 14 year old Boxer down a year ago, we finally convinced him this family needs another dog!  He has quickly become Jim's new best friend.  Jim takes him to the job site with him every day, he sits on Jim's lap while he drives, and is dirty as can be when he gets home.  It's amazing how the love, companionship and loyalty of a little puppy, can really brighten a person's day. 

We wanted to thank Rogers Heelers, for allowing us to make our home, Blu's home, and to Robin and Becky for making it all possible.  We love you guys!

Blu will be heading on a 13 hour road trip with us soon.  Two four year olds and a 2 month old puppy...wish us luck!

"A dog is the only thing on earth that loves you more than he loves himself" ~ Josh Billings



Love at first sight




At the airport